'my daughter's allergic to the sun – her blood boils if she's outside too long'

Mirror

'my daughter's allergic to the sun – her blood boils if she's outside too long'"


Play all audios:

Loading...

NATASSJA CHADWICK, 37, FOUND OUT HER THEN TWO-YEAR-OLD MADISON WAS ALLERGIC TO THE SUN WHEN HER FACE, ARMS AND LEGS TURNED BRIGHT RED AND SHE BEGAN SCREAMING AND SCRATCHING AT HER SKIN


16:44, 01 Jun 2025 A mum has revealed the harrowing way she found out her child is allergic to the sun – and says her blood "boils" if she is outside for too long. Natassja


Chadwick, 37, was left "horrified" at seeing her daughter Madison screaming and scratching her skin - but she assumed it was simply a case of sunburn. However when the child's


face, arms and legs turned bright red, the mum knew something much worse was going on. It turns out that Madison, who was two at the time, has erythropoietic protoporphyria, otherwise known


as being allergic to the sun. "When I took Madison to the doctors, they told me that, essentially, her blood was on fire," the carer from the Isle of Man said. READ MORE:


Woman's mint allergy is so bad she can be hospitalised by toothpaste breath "I was horrified at what my little girl had been experiencing. As it's so rare, there's no


cure. So whenever we go out, she's covered head-to-toe and keeping any exposed skin slathered in suncream. I can't bear to hear that screeching, gut-wrenching cry again. And mum


guilt when I want to sit out in the garden is real." The family hasn't been able to go abroad in years, though they try to visit Center Parcs when it's cool outside. Natassja


was first alerted to her daughter's skin allergy when she and her husband, David, 42, had forgotten to put sun cream on her while out at the zoo. Article continues below The tot's


legs had caught the sun, sparking a painful reaction and although feeling guilty, they took it as a lesson learned. But a year later, after lathering her up in sun cream while playing in the


garden, it happened again. She said: "I heard that same horrific cry that had been replaying in my head over and over for the past year. "I asked her what was wrong, as I


couldn't see anything. She told me her skin was so itchy that it hurt. As her body got progressively more red and she continuously cried out in pain, I knew something terrible was


happening." The doctor prescribed antihistamines and sent them home, as it wasn't clear what could be causing it – though it was confirmed to be an allergic reaction. Over the


autumn months, though, Madison's reactions stopped. Until the following summer, which is when the ball dropped. Natassja said: "Madison was outside with her friends when I heard


that heartbreaking wail again. She was scratching her arms and legs, which swelled. I took her to hospital, where they ran tests and confirmed her diagnosis." Erythropoietic


protoporphyria affects one in every 140,000 people in the UK, according to Oxford Academic, with only 394 known with the condition. It's caused by a genetic mutation in the blood,


making those affected allergic to sunlight. Currently, medications are being tested to help with the condition, though this isn't available right now. Natassja tries to keep Madison,


now aged 13, and her brother, Isaac, 11, who also has the allergy, indoors as much as possible. However, she worries this means her kids will become isolated as a result. The mum said:


"I hate being sat at home while the sun is shining with our curtains closed. The kids miss out on so many play dates with their friends. I worry they’ll lose their social skills and


become shells of themselves. "Keeping two children entertained indoors is hard; especially as their friends are outside at the beach or playing sports. If Isaac had it his way, he would


be outside from early morning until the last thing at night – but their condition makes this impossible. "Madison has so many friends and wants to hang out with them, but


realistically, she can't always join in. I struggle in the summer, trying to get the balance right with them, but also battling my own desire to get out in the sun. Article continues


below "It's extremely stressful, timing taking them to events, so we can do everything quickly and leave to get them home safe in the dark. I did my research and found a charity


that helped put us in touch with other children going through the same thing. "Knowing there's others like them out there was such a relief. It's helped them, and me, feel


less alone in this battle." Madison and Isaac are at risk of liver failure and due to their allergy, are unable to have anything with iron. It's unclear the extent of their


condition, though the family are remaining positive. Natassja added: "I want to raise awareness to help progress research into this disease. I've raised money and continue to


spread the word. They're happy, fun and resilient children. I know they'll remain strong no matter what."


Trending News

Combat fatigue with these easy at-home yoga asanas

5.PadaHasthasana - Forward bending BEGIN BY STANDING STRAIGHT- BEND YOUR BODY FORWARD AT THE PELVIS TOWARDS THE GROUND-P...

Report 16/2011: derailment in summit tunnel

REPORT 16/2011: DERAILMENT IN SUMMIT TUNNEL Derailment in Summit tunnel, near Todmorden, West Yorkshire, 28 December 201...

Social media acts as outlet for users to embrace awkwardness, differences

'Lord Bavuma, It’s time for Africa': Fans react as South Africa beat Australia in WTC 2025 final to end 27-year ICC trop...

Furious food row erupts over controversial 'hawaiian pasta' recipe

Twitter users were in uproar on Thursday (April 28) after a recipe was posted on the BBC food website. The Hawaiian spag...

Quiz: Are You Ready For Your Second Career?

Work & Jobs Careers Second Careers Quiz Find out how ready you are for your next act By Kenneth Terrell   En español Pub...

Latests News

'my daughter's allergic to the sun – her blood boils if she's outside too long'

NATASSJA CHADWICK, 37, FOUND OUT HER THEN TWO-YEAR-OLD MADISON WAS ALLERGIC TO THE SUN WHEN HER FACE, ARMS AND LEGS TURN...

Measles outbreaks show legal challenges of balancing personal rights and public good

Vaccines, like any other FDA-approved product such as a prescription drug or medical device, carry a set of risks and be...

This is what it's like being a teacher with ms during the pandemic

COVID-19 is not only a physical danger, but it’s also made the negative parts of being a teacher seem even worse. I’m an...

England coach borthwick must ignore sentiment and use ford not farrell vs japan

George Ford was so good last week against Argentina that he should have nailed down the England No 10 jersey. A World Cu...

Sen. Gore, family escape house fire

ARLINGTON, Va. — Sen. Albert Gore Jr. (D-Tenn.) and his family escaped unharmed early today after a malfunctioning furna...

Top